trisomy 21
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Fashion and homewares celebrating Down’s Syndrome

Tales from my own T21 star, Rosie.

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Love for a special needs mum is…

Love for a special needs mum is…

Since having RoRo, we have been blessed with outpourings of love from so many people. It’s in the darkest of times that this love has shone into our lives, lifting us back up and giving us hope. Having a child with Down’s Syndrome is a blessing, but it takes a village to raise that child with love.

Oliver Hellowell

Oliver Hellowell

Oliver Hellowell is blessed with the special gift of capturing wonderful moments in nature on camera. His has a unique gift for spotting details and beautiful patterns in nature. Oliver says "I love my photography...it's important to me, and people love my pictures –...

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t21allstars

Down Syndrome champion #t21allstars
👭 Mama to RoRo and S
🌟🌟 Stories of trisomy 21 stars 🌟🌟
Gardener 🌱 web designer 💻 baker 🍰 writer 📖

This time last year RoRo was so far from walking i

This time last year RoRo was so far from walking independently.
Today, Rosie got a certificate for 'physical literacy' at Little Kickers. She's come on so much in this last year, and that's all down to her determination and strength of character.

Thanks to Coach Gareth at Little Kickers UK for his patience with RoRo. We'll make a footballer out of her yet ⚽️😁 (And after a terrible week health wise for Rosie, this really lifted my mood.) #t21allstars #downssyndrome #littlekickers #downsyndrome #hypermobility #hypotonia #wouldntchangeathing #heartwarrior #tubiebaby

At yesterday's @kssahsn event this slide resonated

At yesterday's @kssahsn event this slide resonated. These are all the people involved in RoRo's care, it's a lot but each is valuable.
It's not always easy to navigate, but being RoRo's carer, it's a necessary job! It's also worth noting that some of these services (SALT & physio) have really limited provision via NHS and we supplement it locally via fundraising with our local t21friends group.
#t21allstars #t21 #downsyndrome
#wouldntchangeathing #disability #differentlyable #morealikethandifferent #advocate #learningdisability

Here's the gorgeous RoRo partying away at the Rona

Here's the gorgeous RoRo partying away at the Ronald McDonald House Christmas Disco 💃💓 Today I spoke at an event with medical professionals about learning disabilities. It's always slightly terrifying sharing my personal story! It was a really interesting day, and I'm hoping the start of some excellent work to transform the care of people with learning disabilities.
#trisomy21 #t21allstars #downsyndrome #downssyndrome #learningdisability #wouldntchangeathing #awareness #myvoice #mylifemyvoice

This week has been pretty amazing in RoRo's world!

Just a regular morning with a poorly RoRo ... not

Just a regular morning with a poorly RoRo ... not letting it get in the way of a bit of weight lifting!
#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #changingthefaceofbeauty #changingperceptions

RoRo doesn't stand still for long enough to get a

RoRo doesn't stand still for long enough to get a clear photo! Isn't this dress that her Granny made for her just gorgeous!
#handmadewithlove #trisomy21 #downsyndrome #t21allstars #wouldntchangeathing

RoRo has progressed to walkers physio with our loc

RoRo has progressed to walkers physio with our local T21 group! She was really enjoying the fine motor skills work today 👋✍👏👏👏👏👏

Suddenly trying to keep on top of RoRo is exhausti

Suddenly trying to keep on top of RoRo is exhausting! She zigs and zags like a cheeky gazelle. I turn my back for a second and she's disappeared!

Fortunately her big sister S is lovely and calm (most of the time!). Is it bed/gin time yet 😬😂

Putting Peppa Pig felt friends to good use. Rosie

Putting Peppa Pig felt friends to good use. Rosie practised signing the animals, fabulous fine motor skills, and we're reinforcing what clothes go where.
Love my little munchkin.
#makaton #peppapig #finemotorskills #t21allstars #downssyndrome #wcatcharity #wouldntchangeathing #trisomy21

When we got RoRo's diagnosis of #downssyndrome one

When we got RoRo's diagnosis of #downssyndrome one of our main concerns was how it would impact on her big sister.
We needn't have worried! The two are absolutely devoted to each other. RoRo was knocking on the door of school at 3pm waiting for her sister, and as soon as they're home, S takes RoRo's shoes off 😍😍😍😍 #wouldntchangeathing #downsyndrome #t21allstars #t21 #downrightawesome #rightfulbirth

RoRo showing off her new skills after physio! #t2

RoRo showing off her new skills after physio!
#t21 #t21allstars #downrightawesome #downsyndrome

RoRo went to another birthday party today, and she

RoRo went to another birthday party today, and she loved it! It's fabulous how accepting other children are, it was lovely to see her play with her nursery friends.
I'm sure some people are thinking "what's the big deal about getting invited to a party?". For us, it shows she's accepted as she is. She doesn't need any special treatment to enjoy the party, and she can play as an equal to her peers.
#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #wcat #inclusion

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