trisomy 21
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Fashion and homewares celebrating Down’s Syndrome

Tales from my own T21 star, Rosie.

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Love for a special needs mum is…

Love for a special needs mum is…

Since having RoRo, we have been blessed with outpourings of love from so many people. It’s in the darkest of times that this love has shone into our lives, lifting us back up and giving us hope. Having a child with Down’s Syndrome is a blessing, but it takes a village to raise that child with love.

Oliver Hellowell

Oliver Hellowell

Oliver Hellowell is blessed with the special gift of capturing wonderful moments in nature on camera. His has a unique gift for spotting details and beautiful patterns in nature. Oliver says "I love my photography...it's important to me, and people love my pictures –...

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t21allstars

Down Syndrome champion #t21allstars
👭 Mama to RoRo and S
🌟🌟 Stories of trisomy 21 stars 🌟🌟
Gardener 🌱 web designer 💻 baker 🍰 writer 📖

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Putting Peppa Pig felt friends to good use. Rosie practised signing the animals, fabulous fine motor skills, and we're reinforcing what clothes go where.
Love my little munchkin.
#makaton #peppapig #finemotorskills #t21allstars #downssyndrome #wcatcharity #wouldntchangeathing #trisomy21

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When we got RoRo's diagnosis of #downssyndrome one of our main concerns was how it would impact on her big sister.
We needn't have worried! The two are absolutely devoted to each other. RoRo was knocking on the door of school at 3pm waiting for her sister, and as soon as they're home, S takes RoRo's shoes off 😍😍😍😍 #wouldntchangeathing #downsyndrome #t21allstars #t21 #downrightawesome #rightfulbirth

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RoRo showing off her new skills after physio!
#t21 #t21allstars #downrightawesome #downsyndrome

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RoRo went to another birthday party today, and she loved it! It's fabulous how accepting other children are, it was lovely to see her play with her nursery friends.
I'm sure some people are thinking "what's the big deal about getting invited to a party?". For us, it shows she's accepted as she is. She doesn't need any special treatment to enjoy the party, and she can play as an equal to her peers.
#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #wcat #inclusion

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This weekend RoRo has been invited to two birthday parties! I can't tell you how much joy Pete and I feel when she gets a party invite. It feels such a milestone.⁠
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Thanks to Anya and Sophia for today's incredible party, RoRo had a fabulous time!⁠
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#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns⁠
#wouldntchangeathing #disability #disabilityawareness #downsyndrome #downsyndromeaareness #changingthefaceofbeauty #differentlyable #differentnotless #iamable #theluckyfew #morealikethandifferent #t21 #nothingdownaboutit #homieswithanextrachromie #specialneedskids #specialneedschildren #advocate #bethechange #makeadifference #inclusion

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🔊 sound up 🔊

RoRo the Dragon Slayer 🐲🐲🐲🐲🐲⚔⚔⚔⚔

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My first time away overnight for work, in a long time, and RoRo is poorly 🙁 We joke about how she times it badly every time! But honestly, it breaks my heart not to be there when she's ill.
Fortunately we've got super support and Pete will do a cracking job caring for her.

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PC RoRo, Sussex Police's newest recruit! ⁠
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#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns⁠
#dontbesorry #tubiebaby #heartwarrior

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RoRo must have had a growth spurt! She's demolished lots of snacks, omelette, potato and then yogurt.
She fed herself for all of it, and didn't really make a mess until the yogurt. I forgive her though as she can now clean herself up like a pro!

#t21allstars #wouldntchangeathing #disability #disabilityawareness #downsyndrome #downsyndromeaareness #changingthefaceofbeauty #differentnotless #iamable #theluckyfew #morealikethandifferent #t21 #nothingdownaboutit #homieswithanextrachromie #advocate #mumlife #letsgolittles #worldoflittles #candidchildhood #cameramama #igkids #instakids #mumsofinstagram #childrenofinstagram #bethechange #makeadifference #dailyparenting #thisparentlife #joyfulmama #makingmemories

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RoRo has had plenty of healthcare appointments recently - dietician, speech and language, health visitor to check her development, and the local SEN team to assess whether she might need an EHCP.⁠
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She's been a superstar throughout, engaging brilliantly with all of them. I've been so proud of her progress, especially her walking and signing. ⁠
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On Monday, our lovely health visitor was really impressed with RoRo's progress, and did what I consider to be an accurate representation of her development and skills. ⁠
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Yesterday, iSEND visited. They're central to whether RoRo will get additional support to access education, which Pete and I think she needs (at a 1-1 level, and at pre-school). So far iSEND have refused her for the EHCP process once, hopefully yesterday's visit changed their mind.⁠
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The main thing that stays with me from yesterday's appointment was the assessment of RoRo's signing. I think RoRo's signing is amazing, she's got so many signs. I'm well aware that I can understand almost all of them, but there are some that I thought others trained in makaton would understand. But, the iSEND lady broke my heart by saying she couldn't get any of them 😭😭😭 This really upset me. RoRo has worked so hard and really uses these signs to communicate, so the idea that Pete and I are the only ones that understand her is heartbreaking.⁠
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No-one said this would be easy, but it's worth it for this gorgeous girl.⁠
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#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns⁠
#wouldntchangeathing #disability #disabilityawareness #downsyndrome #downsyndromeaareness #changingthefaceofbeauty #differentlyable #differentnotless #iamable #theluckyfew #morealikethandifferent #t21 #nothingdownaboutit #homieswithanextrachromie #specialneedskids #specialneedschildren #advocate #makaton

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Story of my morning... 1. RoRo trashes the house
2. Spend 30 minutes getting her to sleep
3. Successful transfer to her cot - Winning!
4. Less than 30 minutes later - wide awake.
Fun days. 🤦🏼‍♀️😖 #t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #nonap
#wouldntchangeathing #disability #disabilityawareness #downsyndromeaareness #changingthefaceofbeauty #differentlyable #differentnotless #iamable #theluckyfew #morealikethandifferent #t21 #nothingdownaboutit #homieswithanextrachromie #mumlife #momlife #letsgolittles #worldoflittles #candidchildhood #igkids #instakids #mumsofinstagram #childrenofinstagram #dailyparenting

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RoRo is such a joy at the moment! ⠀
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RoRo has just started to walk independently - today was the first time she's done so outside for more than a few steps. She sees the joy in everything, and just loves being in the fresh air. RoRo is also incredibly sociable, happily playing with any child who was near her, regardless of their age or size!⠀
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#t21allstars #t21 #downsyndrome #nothingdownaboutdowns⠀
#dontbesorry #tubiebaby #heartwarrior ⠀
#wouldntchangeathing #disability #downsyndrome #changingthefaceofbeauty #differentnotless #iamable #theluckyfew #morealikethandifferent #nothingdownaboutit #letsgolittles #worldoflittles #candidchildhood #cameramama #instakids #childrenofinstagram #pixelkids #pixel_kids #bethechange #dailyparenting #thisparentlife #heartfluttermoments #makingmemories #cherisheverymoment

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