trisomy 21
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Fashion and homewares celebrating Down’s Syndrome

Tales from my own T21 star, Rosie.

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Love for a special needs mum is…

Love for a special needs mum is…

Since having RoRo, we have been blessed with outpourings of love from so many people. It’s in the darkest of times that this love has shone into our lives, lifting us back up and giving us hope. Having a child with Down’s Syndrome is a blessing, but it takes a village to raise that child with love.

Oliver Hellowell

Oliver Hellowell

Oliver Hellowell is blessed with the special gift of capturing wonderful moments in nature on camera. His has a unique gift for spotting details and beautiful patterns in nature. Oliver says "I love my photography...it's important to me, and people love my pictures –...

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Yay, RoRo rocked her heart check up today! Her hea

Yay, RoRo rocked her heart check up today! Her heart is doing really well, just a slightly leaky valve to keep an eye on.
We practised everything before using a social story and the girls' doctors kit. Every stage, from saying hi to the nurses, to seeing Dr Bell, getting weighed and measured, the wobbly jelly, the PPE... And Rosie behaved perfectly.
This was the first time I've used social stories, I'll definitely use them again.
#downssyndrome #t21allstars #downrightawesome #downsyndrome #positiveaboutdownsyndrome #wouldntchangeathing #wcatcharity #dailyparenting #tubefed #heartwarrior

Chef RoRo 👩🏼‍🍳 #downrightawesome #t21al

Chef RoRo 👩🏼‍🍳 #downrightawesome #t21allstars #wcatcharity #positiveaboutdownsyndrome

How gorgeous is RoRo 😍🤓 Love this girl so mu

How gorgeous is RoRo 😍🤓 Love this girl so much.
#downsyndrome #downssyndrome #miraflex #wouldntchangeathing #positiveaboutdownsyndrome

It's not everyday you're featured in *five* papers

It's not everyday you're featured in *five* papers, but today Rosie was! We're very proud to support Ronald McDonald Houses - followers of us will know how much we relied on the Brighton and Evelina houses when Rosie was little, and spent months in hospital.⁠
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Today they launched an advertising campaign, and chose Rosie to be the face of it. Everyone needs more Rosie in their life! ⁠
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If you want to donate, text RMHC to 70470k, to donate £5.⁠
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#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #wouldntchangeathing ⁠
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@rmhcuk

Apparently the TV makes the perfect backdrop for d

Apparently the TV makes the perfect backdrop for dinosaur stickers 🦖🦕 thankfully they're reusable and not super sticky!
In lockdown we're all for whatever keeps the kids busy!

#lockdown #t21allstars #downssyndrome #positiveaboutdownsyndrome

Morning exercise with @cosmickidsyoga - I love how

Morning exercise with @cosmickidsyoga - I love how both girls are fully engaged 🧘🏼‍♀️🧘🏼‍♀️ #miniyogi #mindfulkids #cosmickids #downrightawesome #wcatcharity #downsyndrome #t21allstars

The weekend seems so long ago already, good thing

The weekend seems so long ago already, good thing it's only a few days until the next weekend!⁠
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RoRo started preschool in January, and she's doing so well. Her speech and communication is coming on so much - suddenly she's trying to say more words and signing more confidently. One of the real changes is the force with which she's trying to communicate - she tries all methods to get herself understood! Especially when she's asking for ice cream, biscuits or cake! 🍦🎂⁠
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#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns⁠
#wouldntchangeathing #disability #disabilityawareness #downsyndrome #downsyndromeaareness #changingthefaceofbeauty #differentlyable #differentnotless #iamable #theluckyfew #morealikethandifferent #t21 #nothingdownaboutit #homieswithanextrachromie

This time last year RoRo was so far from walking i

This time last year RoRo was so far from walking independently.
Today, Rosie got a certificate for 'physical literacy' at Little Kickers. She's come on so much in this last year, and that's all down to her determination and strength of character.

Thanks to Coach Gareth at Little Kickers UK for his patience with RoRo. We'll make a footballer out of her yet ⚽️😁 (And after a terrible week health wise for Rosie, this really lifted my mood.) #t21allstars #downssyndrome #littlekickers #downsyndrome #hypermobility #hypotonia #wouldntchangeathing #heartwarrior #tubiebaby

At yesterday's @kssahsn event this slide resonated

At yesterday's @kssahsn event this slide resonated. These are all the people involved in RoRo's care, it's a lot but each is valuable.
It's not always easy to navigate, but being RoRo's carer, it's a necessary job! It's also worth noting that some of these services (SALT & physio) have really limited provision via NHS and we supplement it locally via fundraising with our local t21friends group.
#t21allstars #t21 #downsyndrome
#wouldntchangeathing #disability #differentlyable #morealikethandifferent #advocate #learningdisability

Here's the gorgeous RoRo partying away at the Rona

Here's the gorgeous RoRo partying away at the Ronald McDonald House Christmas Disco 💃💓 Today I spoke at an event with medical professionals about learning disabilities. It's always slightly terrifying sharing my personal story! It was a really interesting day, and I'm hoping the start of some excellent work to transform the care of people with learning disabilities.
#trisomy21 #t21allstars #downsyndrome #downssyndrome #learningdisability #wouldntchangeathing #awareness #myvoice #mylifemyvoice

This week has been pretty amazing in RoRo's world!

Just a regular morning with a poorly RoRo ... not

Just a regular morning with a poorly RoRo ... not letting it get in the way of a bit of weight lifting!
#t21allstars #t21 #downsyndrome #lovedoesntcountchromosomes #superstar #nothingdownaboutdowns #changingthefaceofbeauty #changingperceptions

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