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Everything’s Rosie

Everything’s Rosie

Rosie is our second, much wanted, daughter. We are blessed with another daughter who is almost 3 years older than Rosie, and the best big sister ever. When we received her Down's Syndrome diagnosis we were terrified of what her future would hold.  Rosie is a joy and a...

Love for a special needs mum is…

Love for a special needs mum is…

Since having RoRo, we have been blessed with outpourings of love from so many people. It’s in the darkest of times that this love has shone into our lives, lifting us back up and giving us hope. Having a child with Down’s Syndrome is a blessing, but it takes a village to raise that child with love.

Why we tube feed RoRo

Why we tube feed RoRo

This article first appeared in a PINNT newsletter My daughter Rosie was born in November 2016, and had an NG (naso-gastric) tube fitted almost immediately.  She has Downs Syndrome, and congenital heart disease. Although she was relatively ‘heart healthy’ at birth, she...

Why Trisomy 21 and not Down’s Syndrome

Why Trisomy 21 and not Down’s Syndrome

I often get asked why I use T21 rather than Down’s Syndrome.  To be honest, I use the terms interchangeably. I prefer T21, but I still use Down’s Syndrome quite often! Why is it called Down’s Syndrome? The first person to formally identify a group of patients with...

All The Balls – Motor Skills in Down’s Syndrome

All The Balls – Motor Skills in Down’s Syndrome

RoRo has wonderful collection of balls, and they’re a favourite toy for her.  The balls are all different shapes, sizes, textures and colours. As well as being great fun to play with, balls are a wonderful way for her to develop her core strength, fine and...

10 insider tricks to NG tube-feeding your baby

10 insider tricks to NG tube-feeding your baby

Routine, routine, routine Having come out of hospital with a routine, we fell out of it quite quickly once we had to juggle our pre-schooler with our tubie baby. Big mistake!   With multiple medications, and 2 or 3 hourly feeds, routines are so important. We have gone...

I woudn’t change a thing

I woudn’t change a thing

#wouldntchangeathing Today, March 21st, is Down's Syndrome Day.  A day we celebrate all those who have Down's Syndrome. Would I really change nothing? 18 months ago, I hoped and prayed that my daughter would not have Down's Syndrome.  That all the tests would be...

Oliver Hellowell

Oliver Hellowell

Oliver Hellowell is blessed with the special gift of capturing wonderful moments in nature on camera. His has a unique gift for spotting details and beautiful patterns in nature. Oliver says "I love my photography...it's important to me, and people love my pictures –...

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